Encyc

Encyc houses over 100 concepts relevant to the history of eugenics and its continued implications in contemporary life. These entries represent in-depth explorations of key concepts for understanding eugenics.

Aboriginal and Indigenous Peoples
Michael Billinger
Alcoholism and drug use
Paula Larsson
Archives and institutions
Mary Horodyski
Assimilation
Karen Stote
Bioethical appeals to eugenics
Tiffany Campbell
Bioethics
Gregor Wolbring
Birth control
Molly Ladd-Taylor
Childhood innocence
Joanne Faulkner
Colonialism
Karen Stote
Conservationism
Michael Kohlman
Criminality
Amy Samson
Degeneracy
Michael Billinger
Dehumanization: psychological aspects
David Livingstone Smith
Deinstitutionalization
Erika Dyck
Developmental disability
Dick Sobsey
Disability rights
Joshua St. Pierre
Disability, models of
Gregor Wolbring
Down Syndrome
Michael Berube
Education
Erna Kurbegovic
Education as redress
Jonathan Chernoguz
Educational testing
Michelle Hawks
Environmentalism
Douglas Wahlsten
Epilepsy
Frank W. Stahnisch
Ethnicity and race
Michael Billinger
Eugenic family studies
Robert A. Wilson
Eugenic traits
Robert A. Wilson
Eugenics
Robert A. Wilson
Eugenics as wrongful
Robert A. Wilson
Eugenics: positive vs negative
Robert A. Wilson
Family planning
Caroline Lyster
Farming and animal breeding
Sheila Rae Gibbons
Feeble-mindedness
Wendy Kline
Feminism
Esther Rosario
Fitter family contests
Molly Ladd-Taylor
Gender
Caroline Lyster
Genealogy
Leslie Baker
Genetic counseling
Gregor Wolbring
Genetics
James Tabery
Genocide
Karen Stote
Guidance clinics
Amy Samson
Hereditary disease
Sarah Malanowski
Heredity
Michael Billinger
Human enhancement
Gregor Wolbring
Human experimentation
Frank W. Stahnisch
Human nature
Chris Haufe
Huntington's disease
Alice Wexler
Immigration
Jacalyn Ambler
Indian--race-based definition
Karen Stote
Informed consent
Erika Dyck
Institutionalization
Erika Dyck
Intellectual disability
Licia Carlson
Intelligence and IQ testing
Aida Roige
KEY CONCEPTS
Robert A. Wilson
Kant on eugenics and human nature
Alan McLuckie
Marriage
Alexandra Minna Stern
Masturbation
Paula Larsson
Medicalization
Gregor Wolbring
Mental deficiency: idiot, imbecile, and moron
Wendy Kline
Miscegenation
Michael Billinger
Motherhood
Molly Ladd-Taylor
Natural and artificial selection
Douglas Wahlsten
Natural kinds
Matthew H. Slater
Nature vs nurture
James Tabery
Nazi euthanasia
Paul Weindling
Nazi sterilization
Paul Weindling
Newgenics
Caroline Lyster
Nordicism
Michael Kohlman
Normalcy and subnormalcy
Gregor Wolbring
Parenting and newgenics
Caroline Lyster
Parenting of children with disabilities
Dick Sobsey
Parenting with intellectual disabilities
David McConnell
Pauperism
Caroline Lyster
Person
Gregor Wolbring
Physician assisted suicide
Caroline Lyster
Political science and race
Dexter Fergie
Popular culture
Colette Leung
Population control
Alexandra Stern
Prenatal testing
Douglas Wahlsten
Project Prevention
Samantha Balzer
Propaganda
Colette Leung
Psychiatric classification
Steeves Demazeux
Psychiatry and mental health
Frank W. Stahnisch
Psychology
Robert A. Wilson
Public health
Lindsey Grubbs
Race and racialism
Michael Billinger
Race betterment
Erna Kurbegovic
Race suicide
Adam Hochman
Racial hygiene
Frank W. Stahnisch
Racial hygiene and Nazism
Frank Stahnisch
Racial segregation
Paula Larsson
Racism
Michael Billinger
Reproductive rights
Erika Dyck
Reproductive technologies
Caroline Lyster
Residential schools
Faun Rice
Roles of science in eugenics
Robert A. Wilson
Schools for the Deaf and Deaf Identity
Bartlomiej Lenart
Science and values
Matthew J. Barker
Selecting for disability
Clarissa Becerra
Sexual segregation
Leslie Baker
Sexuality
Alexandra Minna Stern
Social Darwinism
Erna Kurbegovic
Sociobiology
Robert A. Wilson
Sorts of people
Robert A. Wilson
Special education
Jason Ellis
Speech-language pathology
Joshua St. Pierre
Standpoint theory
Joshua St. Pierre
Sterilization
Wendy Kline
Sterilization compensation
Paul Weindling
Stolen generations
Joanne Faulkner
Subhumanization
Licia Carlson
Today and Tomorrow: To-day and To-morrow book series
Michael Kohlman
Training schools for the feeble-minded
Katrina Jirik
Trans
Aleta Gruenewald
Transhumanism and radical enhancement
Mark Walker
Tuberculosis
Maureen Lux
Twin Studies
Douglas Wahlsten & Frank W. Stahnisch
Ugly Laws
Susan M. Schweik and Robert A. Wilson
Unfit, the
Cameron A.J. Ellis
Violence and disability
Dick Sobsey
War
Frank W. Stahnisch
Women's suffrage
Sheila Rae Gibbons

Disability rights

Disabled people have historically been subhumanized, believed incapable of making their own choices, and unfit to live amongst the general public. This patronizing view of people with disabilities allowed 20th century eugenics programs to be carried out in the open, even with the approval of popular culture. In many ways, the disability rights movement is directly responsible for the now common belief that disabled lives are lives worth living and that disabled people should be capable of making their own life choices. The Disability rights movement gained momentum in the 1970s, activists fiercely argued that disabled people are equal citizens and should be treated as such. Disability rights activists work to change government policy as well as the cultural perception of disability in order to overcome barriers to full inclusion within society. Canadian Disability rights has had important consequences in relation to eugenics, making the legal action of eugenic survivors against the Alberta provincial government thinkable, as well as gathering political support for the struggle against ableism and newgenic practises.

Canadian disability rights
Over the past 45 years, the disability rights movement has fought for the recognition of disabled people as full and equal citizens rather than objects of charity. This is a movement that must be traced historically, from the welfare state to the 1985 Charter of Rights and Freedoms. Moreover, it is important to recognize that the struggle for disability rights in Canada is not an isolated movement, but rather emerges alongside the recognition of disability rights in, for example, the United States under the 1990 Americans with Disability Act and the World Health Organization’s 2008 Convention on the Rights of Persons with Disabilities.

The Welfare State
Canadian disability policy emerged after WWI as an attempt to reinstate disabled veterans in the workforce. Welfare approaches to disability were paternalistic and subhumanizing, grounded in the then common-sense medicalization of disability and the charity model of disability. Disabled people were segregated educationally and vocationally through rehabilitation, work programmes, and social benefit programmes. At the same time, disability organizations and charities were organized and led by medical professionals, experts, and family members, and excluded those who were disabled from leadership roles and basic participation in determining their future. The patronization of persons with disabilities and the corresponding absence of legal protection was a causal factor in mustering discriminatory attitudes about persons with disabilities that led to the largely unquestioned continuation of eugenics policies in Western Canada targeting the “feeble-minded” or mentally deficient.

Civil Rights
Passage from the welfare state to disability rights was made through equity-seeking movements of the 1960s. In North America (and abroad) the civil disobedience and activism of the trade unionist movement, women’s rights movement (feminism, women’s suffrage), and civil rights movement stirred language of discrimination and resistance within disability communities. Being able to articulate disabled experience in terms of oppression was instrumental in reconceptualizing disability not as a matter of charity, but of fundamental civil rights.

Motivated by the growing consciousness of civil rights movements, the Albertan premier Peter Lougheed introduced a series of social policy reforms in the early 1970s. Chief among these was the 1971 Alberta Bill of Rights intended to protect individual rights. The Sexual Sterilization Act was brought to the attention of the Lougheed government by citizens during the process of reviewing existent legislature in possible conflict with the Alberta Bill of Rights. Found to be grossly inconsistent with the proposed bill, the Sexual Sterilization Act was repealed in 1972.

Disability Rights Movements
In the 1970s, a new generation of Canadian disability groups, such as the Coalition of Provincial Organizations of the Handicapped (now called the Council of Canadians with Disabilities or CCD), were established, comprised of and led by people with disabilities. While disability policy and the ethos of popular culture remained entrenched in paternalistic notions of disability, resistance to charity was emerging. Activists demanded self-determination, self-respect, and equality, and did so by supplanting the medical and charity models of disability with the social model that distinguishes between impairment and disability. This allowed stigma and socio-economic disadvantage to be interrogated apart from bio-medical descriptions of disability, the goal being a barrier-free and inclusive society.

A hard fought outcome of disability rights activism in the 1970s was the Canadian Human Rights Act passed in 1977. This statute included disability as a prohibited ground of discrimination and was a significant step forward in granting disabled Canadians legal equality. However, as a statute—not preserved in the Constitution—the Canadian Human Rights Act could be amended or overturned and thus did not guarantee disabled Canadians civil rights.

The Charter of Rights and Freedoms
Enacted in 1982 as a response to the ineffectiveness of the 1960 Canadian Bill of Rights and the mutability of the Canadian Human Rights Act, the Charter enshrined civil rights within the Constitution. Section 15 of the Charter, brought into force in 1985, guaranteed equality rights on grounds of race, national or ethnic origin, colour, religion, sex, age, and (included at the eleventh hour as a result of lobbying efforts of activists such as Yvonne Peters and Jim Derksen) physical and mental disability. The extent/definition of “reasonable accommodation” continues to be negotiated.

The significance of section 15 of the Charter of Rights for disability is both legal and symbolic. The Charter enshrined disability as a civil and legal, rather than a medical issue. Disability activists worked to seize the potential for equality contained within section 15. From 1985 to 2007, disability rights organizations appeared before the Supreme Court of Canada 37 times both to expand and maintain equality and policies of “reasonable accommodation.” The jurisprudence resulting from strategic litigation such as Eldridge v British Columbia (Attorney General) provided a legal basis for the social model of disability. Yet the Charter carried equally significant symbolic value, precipitating disability rights consciousness from the top down. The cultural intelligibility of ‘disability rights’ was bolstered by the existence of the Charter as well as litigation appealing to the Charter.

Challenges to Disability Rights
While disability activists continue to demand in unison a society free from ableist discrimination, there is far less agreement on how this can and should be accomplished. Disability rights activists working within legal structures routinely champion the social model, a model that has come under considerable criticism within disability studies. Used in litigation, the social model amounts to accommodation, making concessions rather than questioning the very idea of normalcy and sub-normalcy. Many disability activists and theorists understand assimilationist policy and belief-structures to be an inevitable outcome of rights-based discourse politically couched in terms of formal rather than substantial equality.

The use of strategic litigation as the foremost mode of resistance is thus deeply suspect for radical disability activists. From this perspective, disability rights are inseparable from the struggle over the definitional boundaries of normalcy. Radical disability activists seek to unsettle ‘normalcy’ as a natural and stable concept, thereby making space for non-normative modes of embodied existence within society. The political activity of disrupting ableist narratives is irreducible to policy. Yet it must be emphasized that in enacting a paradigm shift away from medicalization and pathologization, the entire disability rights movement—irrespective of internal differences—has been, and continues to be, both empowering and liberating. Disability rights are thus particularly important in countering ableism and ongoing newgenic practices.

-Joshua St. Pierre

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  • Kelemen, R.D., & Vanhala, L. (2010). The shift to the rights model of disability in the EU and Canada. Regional & Federal Studies, 20(1), 1-18.

  • King, D. (2007). Looking back, looking ahead. Proceedings from Eugenics and Sterilization in Alberta: 35 Years Later. Edmonton, Alberta. Retrieved from: http://whatsorts.net/files/DKspeechEugenics.pdf

  • Pratt, S. (2014, September 14). Peter Lougheed leaves lasting economic and political legacy for Alberta. Edmonton Journal. Retrieved from: http://www.edmontonjournal.com/business/Peter+Lougheed+leaves+ lasting+economic+political+legacy+Alberta/7239712/story.html

  • Vanhala, L. (2010). Twenty-five years of disability equality? Interpreting disability rights in the Supreme Court of Canada. Common Law World Review, 39, 27-47.

  • Vanhala, L. (2009). Disability rights activists in the Supreme Court of Canada: legal mobilization theory and accommodating social movements. Canadian Journal of Political Science, 42(4), 981-1002.